PREDICTING SURVIVAL IN 6240 PATIENTS WITH PRIMARY SJÖGREN' SYNDROME (BIG DATA SJÖGREN PROJECT

ACAR-DENIZLI, NIHAN; SEROR, RAPHAELE; ZEHER MARGIT; BALDINI CHIARA; MANDL THOMAS; PRIORI ROBERTA; GOTTENBERG JAQUES; KRUIZE, AIKE A.; QUARTUCCIO LUCA; PRAPROTNIK SONJA; PARK SH; SOLANS, ROSER; SENE D; RISCHMUELLER M; SUZUKI YASUNORI; SEBASTIAN A; NORDMARK, GUNNEL; BRITO ZERON PILAR; VALIM VALERIA; VISSINK ARJAN; RASMUSSEN ASTRID; HOFAUER B; GIACOMELLI ROBERTO; LI X; MOÇA TREVISANI V; BOMBARDIERI, V. TREVISANI, D. HAMMENFORS, S.E. CARSONS, S.G. PASOTO, J. MOREL, ; DANDA, DEBASHISH; PASOTO SG; HAMMENFORS DANIEL; GUEITA TAMER; HERNANDEZ-MOLINA GABRIELA; MOREL, JACQUES; MARIETTE XAVIER; KVARNSTRÖM MARIKA; ATZENI FABIOLA; BARTOLONI ELENA; RAMOS CASALS MANUEL; ISENBERG, DAVID; FRAILE, GUADALUPE; NAKAMURA T; DEVAUCHELLE-PENSEC, VALERIE; BOMBARDIERI, MICHELE; STEVEN E CARSONS; RETAMOZO SOLEDAD; VOLLENVEIDER, CRISTINA

Madrid

Congreso; EUROPEAN LEAGUE AGAINST RHEUMATISM (EULAR); 2017

EULAR

Objectives To correlate the main features at diagnosis with survival in a multicenter international cohort of patients with primary Sjögren syndrome (SS).Methods The Big Data Sjögren Project was formed in 2014 to take a ?high-definition? picture of the main features of primary SS by merging international SS databases (9302 consecutive patients recruited from 21 countries of the 5 continents)Results Data about survival at the last visit was available in 6240 patients (5831 women, mean age at diagnosis of 53yrs, 82% White). After a mean follow-up of 7.1yrs, 407 (6%) patients died. Patients who died were more frequently men (10% vs 6%, p=0.004) and White (96% vs 81%, p