An online community for patient with psoriasis with built-in self reported questionnaires

COLUSSI, GIULIANA; INDA, DELFINA; BRUCHANSKI, LUCILA; HERNANDEZ, BARBARA; BOLLEA, MARIA LUZ; CURA, MARIA JULIA; GALIMBERTI, MARIA LAURA; MAZZUOCCOLO, LUIS D.; SOMMER, JANINE; PLAZZOTTA, FERNANDO; LUNA, DANIEL R

Congreso; MIE 2021 conference, European Federation of Medical Informatics.; 2021

Abstract. This study presents an online psoriasis community developed withdermatologists in a PHR. We describe the interaction of users with this platformand the relationship between the use of self-report questionnaires, their results andusers? subsequent contact with the healthcare system. Out of 2175 users thatinteracted with the platform, 477 visited the forums. 60% of those who completedquestionnaires presented at least one abnormal result that prompted arecommendation for an outpatient visit. Although our data suggest a trend, wefailed to find a statistically significant association between questionnaire severityand visits scheduling. To our knowledge, this is the first study that analyses therelationship between patient self-rep