Caregiving people with Parkinson's disease (PPD)

MARÍA DE LOS ANGELES BACIGALUPE

MOVEMENT DISORDERS

WILEY-LISS, DIV JOHN WILEY & SONS INC

Lugar: New York; Año: 2021 vol. 36 p. 498 - 498

0885-3185

ObjectiveTo show results form a study on caregiving PPD from a relational perspective.BackgroundCaregiving people with chronic neurological diseases like PPD can lead to a caregiver burden in primary caregivers. We understand caregiver burden as a multidimensional concept that includes feeling stress or strain, health and financial problems and diminished well-being associated with her/his caregiving task [1,2]. MethodsSample: 14 primary PPD?s caregivers (12 PPD had attended or attended a supporting group and 2 PPD did not participate actively but had been in contact sometime).Instrument: Zarit Burden Interview (ZBI) [3,4] (cutoffs [5]). Qualitative information collected during the ZBI application. Data collection: Oct 2019-Feb 2020, Feb 2021.Data analysis: descriptive statistics, frequency analysis and non-parametric correlations (Spearman?s Rho, p≤.05) (SPSS 15 and Microsoft Excel). Qualitative description. Ethical note: WMA Declaration of Helsinki [6]ResultsThe mean caregivers age was 62.79 [±17.04], 57.1% (8 participants) had other family responsibilities, 50% (7) had working responsibilities, mean caregiving duration (years) was 8.61 [±4.78], 50% (7) were patients? spouses.The mean total ZBI score was 21.29[±17.68]; interestingly, the median was only 16 and the score amplitude was large (4-71). The 63.3% (9 participants) had little or no burden according to the reference cutoffs [5] and 21.4% (3) had mild burden.Some interesting correlations were:(a) total ZBI score positively correlated with the patient?s time from diagnosis (Rho=0.71, p=.006) and with the acknowledgement of patient?s cognitive difficulties (Rho=0.59, p=.027), and negatively correlated with the acknowledge of the patient?s possibility of independent mobility at home (Rho=-0.81, p=.0008).(b) feeling of burden positively correlated with caregiving sharing (Rho=0.62, p=.017) and with the acknowledge of patient?s cognitive difficulties (Rho=0.62, p=.017), and negatively correlated with the acknowledge of patient?s independent mobility at home (Rho=-0.81, p=.0007).We observed the Marianismo phenomena related to caregiving and gender in Latin culture [7,8].ConclusionsWe observed little caregiver burden. Although these results have limitations, we can suggest that having contact with a PPD support group could be associated with less caregiving burden, along with other cultural, contextual and patient?s symptomatic factors.