Designing an Atopic Dermatitis Community that Integrates Patient Self-Uploaded Information into the EHR to Optimize Follow-up

COLUSSI, GIULIANA; DE MATOS LIMA, S.; SAMBRIZZI, ANA; PLAZZOTTA, FERNANDO; ZIN, YAEL; BRUEY, SILVINA; LUNA, DANIEL R; INDA, DELFINA; ANGLES, MARIA.; MAZZUOCCOLO, LUIS D.

stud health technol inform

Ios Press

Año: 2022

0926-9630

Atopic dermatitis is a common chronic dermatological disease in childhood that can affect people´s quality of life. The aim of this study was to inquire about the difficulties, needs and interests related to the disease that people with eczema and their caregivers have; in order to develop a tool that is useful for the follow-up of the illness. Electronic surveys were sent to potential users and interviews were conducted with professionals who are specialized on the subject. The main findings allowed us to understand the challenges and situations they face on a daily basis, such as the difficulties related to the family support, the queries on the eczema flare-ups, the struggles with the adherence to treatment and the needs of optimizing their quality of life. These results helped us design a tool that allows patients and their companions to better monitor their disease while optimizing communication with their health professionals.