INVESTIGADORES
PONZONI Ignacio
congresos y reuniones científicas
Título:
Multidisciplinary Group To Improve Cancer Information Quality. A Multi-institutional Iniciative In Bahia Blanca, Argentina.
Autor/es:
LAURA, EDUARDO A.; PRINCIPE, NATALIA; FORMIGA, NIDIA; YAÑEZ, LORETO; SERRALUNGA, GABRIELA; PONZONI, IGNACIO; PRIETO, BELÉN; CECCHINI, ROCÍO L.
Lugar:
Balaclava
Reunión:
Conferencia; 33rd IACR (International Agency for Research on Cancer - World Health Organization) Annual Meeting; 2011
Institución organizadora:
IACR (International Agency for Research on Cancer), WHS (World Health Organization)
Resumen:
BACKGROUND: The quality of cancer data depends on multiple factors
including the accesibility to the data and the laws regarding confidentiality .
Our data was included in CIV, 8th and 9th Edition, nevertheless it still
needs to be improved.
The main obstacles found are: insufficient
economic resources, lack of systematization concerning the way data is kept by the
sources, lack of informatization in some of the hospitals and difficulties to
get information from death certificates.
METHODS: Strong advocacy has been
made by our Association (the NGO affording the C R) regarding the necessity to
improve Cancer Information in order to achieve the inclusion of this subject in the political
agenda.
RESULTS: The complaints and mobilization of two Bahía Blanca neighborhoods
claiming that their cancer rates had risen, drove the local government
representatives to promote an agreement between the Municipality, our
Association and the National University for the South. Such agreement has been
recently approved and, therefore, activities started one week ago.
CONCLUSION: Researchers from the informatics area, statisticians, geography
and also a family physician were invited and selected to form our new organization.
The main Multidisciplinary Group (MG) objectives are to create a
software program in order to unify the data storage in the different sources,
promote its use in all hospitals, clinics and laboratories, and advocate for
new legislation regarding the access to cancer data and death certificates.
The MG will also offer scholarships for advanced Health Sciences
students in order to introduce them to cancer epidemiology.