INVESTIGADORES
DRAN Graciela Isabel
congresos y reuniones científicas
Título:
INCIDENCE AND DETERMINANTS OF LOST DIAGNOSTIC OPPORTUNITIES FOR CHILDREN WITH CANCER IN ARGENTINA
Autor/es:
GRYNSZPANCHOLC EDITH; PINTO VIRGINIA; AYOROA ANDREA; GARCIA LETICIA; GRACIELA I. DRAN
Lugar:
WASHINGTON
Reunión:
Congreso; 49 CONGRESS OF THE INTERNATIONAL SOCIETY OF PAEDIATRIC ONCOLOGY; 2017
Institución organizadora:
INTERNATIONAL SOCIETY OF PAEDIATRIC ONCOLOGY SIOP
Resumen:
INCIDENCE AND DETERMINANTS OF LOST DIAGNOSTIC OPPORTUNITIES FOR CHILDREN WITH CANCER IN ARGENTINABACKGROUND. Disparities in accessing to accurate and timely childhood cancer diagnosis are usual in developing countries. Failed or delayed diagnoses are major causes of poor survival and quality of life. The Natali Dafne Flexer Foundation (FNDF) provides integral assistance to families facing pediatric cancer in Argentina. This study contains preliminary data from an ongoing study aimed to analyze the incidence and modulators of lost diagnostic opportunities (LDO) in those families assisted by the FNDF along a five-year period. METHODS. Retrospective quali-quantitative analysis. Families with 0-20 y/o children who got cancer diagnoses between 2011 and 2015 were included. Demographic, disease and health insurance data, and medical institutions involved in the diagnoses process, were compared between groups with or without LDO. Additional data were extracted from parent`s narration.RESULTS. A total of 572 families whose diagnostic trajectory was exhaustively registered were included. 56% of them reported to have one (36%), two (14%), three (3%) or more than three (3%) LDO. 91.5% were Argentinian, being the sample fairly representative of the distribution of childhood cancer in the Country regarding age, province of residence, sex and type of cancer. 30% had social/private health insurance and 69%, Public Health coverage. Retinoblastoma and low age positively correlated with absence of LDO (p