Improvement in recall effectiveness in the Buenos Aires city neonatal screening program (PPN)

MACCALLINI G; GOTTA MG; GUARRERA G ; MICENMACHER V,; BARRERA A,; DRATLER G; SMITHIUS F; CHIESA A.; ARANDA C

CABA

Congreso; XI Congreso Latinoamericano de errores congénitos del metabolismo y pesquisa neonatal; 2019

Sociedad latinoamericana de errores congénitos y pesquisa neonatal (SLEIMPN)

The recall procedure in a neonatal screening program requires an effective strategy in order to timely get in contact with those families whose babies are suspected to have the screened disorders. This allows to confirm the disease and eventually install treatment .Our neonatal screening program has 3 organized levels to carry on the recall task. Initially recall is triggered by the screening laboratory , after, the social service makes another call and finally the Minority General Tutelary Advisory (AGAM) and the Primary Health Assistance Department . Objective: To evaluate the effectiveness of the recall procedure over the years Material y Methods: We analyzed the effectiveness of localization of the recalled newborn coming from 12 public Maternities of Buenos Aires City . In them screening is performed in 4 laboratories for the following disorders : Congenital Hypothyroidism , PKU, Cystic Fibrosis , Congenital adrenal hiperplasia , Galactosemia , Biotinidase defficiency MCCAD, and MSUD.Out of 246274 screened babies from 2010 to 2018 , 11377 newborn were recalled for either cause. Since 2016 the program began to implement educational procedures with meetings where neonatologists, nurses, biochemists , disease specialists and program referents were asked to participate in order to diminish the rate of lost babies . Results During the whole studied period from 11377 recalled babies 9521 (84%)were retrieved by the lab, 1138 (10%) came after the intervention of social services and 347 (3%) did it by means of the AGAM citation . Only 371 children ( 3.26%) were not found after this work out .Nevertheless from 2010 to 2016 the number of lost babies ranged from 2.4% to 5.13% (mean 3.9%)) and with the educational intervention as well as with the personal contact with caretakers this number diminished to 0.98% during 2017-2018. (p